Alzheimer’s/Dementia
The veil has holes
Last night was a very strange night. I cried almost all the way home and didn’t know why. I had a sense of foreboding I couldn’t shake. This school shooting has weighed heavy on my soul. Just too much heartache there for one incident. Too much sorrow for one town to carry. So I thought it was maybe that.
Then I thought about Elaine’s folks. I remembered the times when they were healthier and they would go to church with us. I still remember the day we almost dropped our teeth when her Dad unfolded his wallet and put money in the plate. We have both heard them say many times that “churches are only after your money.” Her Mom was even talking Baptism.
I asked God how it is that somebody can get so close to seeing a better way of life and turning away. To stepping all the way up to the river of life and then turning back around….leaving thirsty.
Then I remembered how many times I had done just that.
When I came through the door Elaine was teary-eyed as well. “I think Mom’s having a heart attack…..what should I do?” She has been through this with her Mom already years ago. And she knew what to do, she just needed someone else to help her carry the load.
“Nothing,” I said….we do nothing because that’s what she said she wanted.
Her Mom’s own words were: “I don’t want to be cut on anymore.” And I can see why. She has been through cancer twice, including a mastectomy, chemo and radiation, 2 heart attacks, and a triple bypass. As a nurse, she diagnosed herself with Alzheimer’s around 10 years ago.
She is done with treatments. And hospitals.
But when you are the one standing there with life and death hanging in the balance, it’s not that easy. Our first instinct is always to do something. But sometimes the right choice is to let nature and God choose. Giving someone what they have chosen is the hardest thing to do because it’s right.
The reason Elaine knew that there was really something wrong was because her Mom didn’t fight her on anything getting ready for bed, and lately that has been the norm.
She went on to tell me that both cats acted strangely all evening. As if they knew something was wrong. Briggs wouldn’t let her Mom alone, he kept following her to her room and jumping on the bed. She finally had to close the door.
So we watched TV and prayed. Elaine had asked her Mom if when the time came, that she would ask God to take her soul. Her Mom said yes. There was no need for a big theological discussion. She knows where salvation comes from, she was raised on it.
And all the while, I remembered how last Christmas was spent in the hospital with her Mom, alone…and I vowed it would never happen again.
Today when I called at lunch she said they were at Subway and her Mom was eating and felt okay, with no recollection of ever feeling bad.
And today, I am feeling how just thin that veil between life and death can be. Any one of us could be instantly on the other side, and not necessarily who you might expect.
Alzheimer’s Diary…..A continuing lesson in love
And above all these put on <sup class="crossreference" value="(A)”>love, which <sup class="crossreference" value="(B)”>binds everything together in <sup class="crossreference" value="(C)”>perfect harmony. And let <sup class="crossreference" value="(D)”>the peace of Christ rule in your hearts, to which indeed you were called <sup class="crossreference" value="(E)”>in one body. And <sup class="crossreference" value="(F)”>be thankful. Colossians 3:14
I have probably tacked this verse onto the beginning of posts more often this year than any other. Have you put on your love today? This past year, I have had to start over time after time, day after day. As most of you know who read my blog on a regular basis, we are working on year two of Elaine’s Mom living with us.
It’s been tough, to say the least. Hygiene is an ongoing issue more and more. We are working on week 4 with no shower, again. The last time, Elaine had to physically get in the shower with her because she refused to put water on her head. And she was washing with shampoo. Incontinence is also a problem. She refuses to wear the undergarments so bedding has to be changed often….laundry done several times a day.
Because she has been increasingly combative, her dose of Anti-psych drug was doubled just this past week. We noticed the rage has been just barely contained….it’s always just under the surface. The pacing and the agitation seem to go hand in hand.
It is disheartening and sobering for Elaine to realize that right now if her Mom were not on the Seroquel she would be in a lock down unit as we speak. Her Mom still knows very well where she is, but when her Doctor tells her that if she won’t let people take care of her she has to go somewhere where they can, he is met with indifference, a shrug of her shoulders.
It has been a constant challenge for both of us to do that “putting on love” thing Paul is talking about. And I am on another trip to California to see my family on Sunday. It’s hard to be the one always left behind. For two years, she has had to watch others travel, go on weekend trips, vacations. That is what caretakers face every day…….for them life has stopped. They feel just as chained as if they were in stocks.
And how can life still feel like it’s at a standstill, when the workload never stops?
Please pray? For wisdom, and strength to bear up. To keep laughing somehow. To know when to say “when.”
Pray for strength and grace for me as well. That I can be the right kind of support. Too often I feel like the check marks on my own personal report card are screaming out a big red “fail.” But God knows my heart, thankfully.
I take comfort in the fact that He hears my prayers of forgiveness uttered after every exasperated blown out sigh……He knows we are all dust after all, nevertheless a kernel of God keeps us all preserved for eternity.
Praise God.
And more and more and more, we are craving the peace, the harmony that used to fill the house. We still have it for the most part, we just have to fight for it where before it was effortless.
Here is the magic formula that works for any and every situation:
Love + Peace = Harmony
I will need until every last breath to put it into practice.
The Final Answer
Unwrapping His Promises
And satisfy the desire of the afflicted,
Then your light will rise in darkness
And your gloom will become like midday.
“And the Lord will continually guide you,
And satisfy your desire in scorched places,
And give strength to your bones;
And you will be like a watered garden,
And like a spring of water whose waters do not fail.
You will raise up the age-old foundations;
And you will be called the repairer of the breach,
The restorer of the streets in which to dwell.
My time in the desert has taught me much. When the heat stretches on and you see no end, you long to escape it. You drive up north, you go to the coast, or you go to the theater or the mall. You learn to adjust what you do. You learn from the little creatures you see that somehow thrive, and it inspires you too to go on. This imagery is easy for us desert dwellers. But here, God is trying to teach a different kind of lesson.
A lesson for when the soul is parched and needs refreshing.
He is trying to teach us a new way of living for when life burns you out. We say, “I need a trip to the Spa,” But He tells us we need to give to those who have less. New life, new energy, new hope is found when we do for others, and when we lean on Him in the doing. In a way, God is saying, “Get your mind off yourself and you will feel better.”
But unless we also harness the power of the Holy Spirit, we will quickly be burned out. It’s only when we join hands with the Creator that this regeneration and refreshment happen. The body might be beat, but inside the Spirit leaps.
In caretaking I have found this to be true. As soon as I stop harnessing God’s power, I find my anger flaring up at all those little moments….a shirt getting stuck on the hanger, her pacing back and forth, her opening and closing the door 10 times.
I focus on a Motorhome that sits idle in storage for the lack of freedom to just get up and go. I lament the loss of freedom and say it’s not fair. What is fair? People in Haiti are living in tents and have no clean water.
It wasn’t fair the Jesus had to go to the cross but He did. And now despite everything I deserve, I get Heaven here and now. And for eternity. With that in view, I can be more than a conqueror.
Whatever we are going through here and now, it is only for a season. And there are blessings everywhere we turn when we have the Lord to refresh us in all those scorched places in life.
Let’s unwrap His promises today, the basket is overflowing……..
Pray as if it’s the first time
A day in the life
Staying one step ahead. That is what you consistently have to do. And if you forget, it throws the whole day off. That kind of living alters your life. It’s very much like having a toddler in the house, you must think of things they may get into before they do. Secure the area at all times.
You leave the washer open in the morning and ready for her soiled PJ’s to go into. And you never leave washed clothes in the washer, soiled clothes will go on top of them. Many loads had to be repeated because of that.
Check room for dirty clothes she puts back in closet.
Secure unopened mail. Put it somewhere she won’t find it.
Leave phone turned down, always.
Don’t leave suitcases out unless you are ready to answer 100 questions about where you are going and when.
Signs on doors, on microwave…….so many rules.
Yesterday the pacing was bad. Every time I settled down to write she would come back in the door. Or go out again. The silent close of the screen door……50 times a day. And every time, the air conditioner would click on trying to keep up with the raised temp in the house.
There used to be a zoo in my hometown that I liked going to, but I always felt sad for the coyote. He paced all day in his little cell. As a kid I wanted to set him free and live the life he was meant to live, running through fields chasing rabbits. I have never really liked zoos since.
I know Joyce must feel a bit like that coyote, and I can’t imagine what it’s like inside her mind. So I really try to be patient. We take her to Walmart and buy her an ice-cream and let her sit on the benches and watch people. She likes that and so far has only wandered off a few times. Security had to be called.
But yesterday I was in a hurry and just wanted to get there and back.
By the end of the day I felt like the coyote as well, so I went to the store again……..I found myself whistling in the aisles…..I felt that sense of freedom that happens when you are suddenly sprung. I understand now how women with small children feel, just wanting to go…….anywhere away.
Elaine dreams of Alaska with an unlisted number.
This is our life right now. And Jesus is here with us. So it is going to be okay. Because…..
“Never will I leave you or forsake you…….”
Asking the big questions
Then I was messing around with the template and header on my blog yesterday and messed it up. So now it is beautifully off centered…..and the lettering is also not centered. Bless Dusty Rayburn for sending me the code. I know what he sent was right because he is a very smart guy, and a techie. But I put the code in and nothing changed.
And I decided that was okay because my life is very much like my crooked blog header right now. A beautiful picture but gloriously off center. Not perfect. So I decided to leave it like that as a reminder.
“How did you love today?”
At the close of each day it’s what I ask myself. It seems more often than not there is a big fat red “F” on the report card in my heart. Mentally I check off everything I did wrong. I see fail after fail. Glaring at me from inside their smug little boxes.
We need to ask ourselves the hard questions as Christians. That was what came out of the church service on Sunday morning and ever since, I have wondered. Have I fit Jesus into a comfortable niche in my life? Am I a “friend” or “follower” like on Facebook or Twitter, or am I a Disciple?
Disciple has definite connotations.
I felt the weight of it all as I stepped out the door to finally go running. I needed it to clear my head, and heart. And as I ran, something happened. I felt it lift. As I heard the words to East and West, I felt the warm oil of His grace from the top of my head all the way down to my toes.
It was like the oil I was anointed with once for sickness. And now I was feeling the healing of His Grace all over again.
Grace that is always greater than all my sin.
And where grace enters in, He always brings His love with it.
Oh God, this is it. Thank you, thank you, thank you, thank you, for the assurance I am still and always Your child.
Only in Jesus can I be that picture of perfection. God sees my heart. The truth is, there is a lot I will get wrong today too, but there are some things I will get right.
I will get up and try again tomorrow with Jesus. And I thought another thing too this morning. That like Alzheimer’s? Once we confess to God, he not only forgives, He forgets all about it.
He has given me a living, breathing example of that right in my own home.
I guess you could say that God has a form of Alzheimer’s too when it comes to our sin.
As far as the east is from the west, So far has He removed our transgressions from us. Psalm 103:12
A day in the life…..
When writing heals what is broken
Born of the one light, Eden saw play
Praise with elation, praise every morning
God’s recreation of the new day”
when you are on your beds,
search your hearts and be silent.
Offer the sacrifices of the righteous
and trust in the Lord.
for you alone, Lord,
make me dwell in safety.










