It’s been two years since her Daddy, (my brother) passed and recently we went to one of their favorite places. We went to recapture, remember, and most importantly, make some new memories. For in all the loss that this life can throw at us, love always remains. And we are thankful, so thankful for these times.

For the best thing we can do sometimes, is hold on to what remains. And it’s a lot.

We played, we splashed in the water, and we rode the Carousel several times, and the log ride. I am not a big fan of roller coasters but the log ride I can do. Just to hear her laugh and scream at me getting wet, it was worth everything. And when she grabbed my hand as we walked all day on the boardwalk, I felt like I had been given a precious gift. Parents of Special Needs kids (and adults) have a challenging task and I will never minimize it.

but I also believe it comes with many blessings that bleed through the exhaustion……

I guess you have to balance what you lose and what you gain along the way.

You may have a much different timetable that everyone else has. Your victories are bigger even when the tasks may be minimal according to what the world thinks. But you celebrate them just the same and maybe more. I remember when she was small, things like going into a store, seeing a man with a beard, or a floaty in a swimming pool meant a hasty retreat out of there.

With all the challenges you face, you remember. And sometimes the remembering makes you cry.

As she grabbed my hand in the crowd this past weekend, I flashed back to this picture when she was about 5 with her dad. Here’s the thing. What would you give to have your grown 22-year-old grab your hand once again? Maybe they are off to college, living far away, or maybe they are in the next room, sullen and an island all to themselves.

What would you give?

But I got to do this. I got to hold her hand and it was a gift she gave me that remains with me still. What a tremendous blessing that we get to see the world through their eyes, and it is still a magical and wondrous place. So, Special Needs parent, God has given you an extra responsibility and you will need your village behind you.

There are challenges. There are the times like this weekend when her world came to an end and her brain was stuck in an endless loop of not wanting to go home, not want it to end. It can be so agonizing when you can’t help. (Hey, I get that way too at the ocean). And it didn’t help that someone had an accident in the pool, and it was closed. That might have helped soften the edges. But to her credit she and Mom got through it.

In the end, I believe Heaven has a place saved for these kids, because in some ways they have never left. They show us the way of simple joy, and purity and how it was long ago in the beginning, without fear, without darkness, when everything was brand new and each new day was a gift to be discovered.

I love you Lauryn, your Auntie Lori.