Alzheimer’s/Dementia

The Lord will hear…….

But know that the Lord has set apart for Himself him who is godly;
The Lord will hear when I call to Him.
Psalm 4:3

I pulled out of the driveway a bit late for church. I was thinking that I might miss the music, and that was okay. Certain days, it’s all I want to hear, and other days I would be content to just sit in the silence for awhile. Just to be in church…..

As I sped along the freeway another thought came. What if, instead of doing church, I went and passed out bottled water to the homeless. Went to serve in the foodbank. Went to the rest home and spent the church hour sitting with him. Praying with him. It was a radical thought. That’s what made me think it might be a God thought.

Instead, I felt my tires go the familiar groove, the safe way. Into the doors I went, into the safety of the church. It’s what I need, I thought. This is how I get ready for the rest of the week. This is what keeps me going all week.

And I was glad I went. But at service’s end, I found myself going the back way home. The way that passed the rest home where he was, Curtis, my best friend’s Dad. He has wreaked such havoc over the last few years, well, longer than that. And though he provided for the family, he was an absent father.

Now everyone is absent from his life, well just about everyone.

Though the choices that have led to this result at the end of his life have been his, it makes it no less tragic how he has ended up.

As I drove past, I felt God whisper for me to pull in. And He might have said that I should go in the room, too. But I wrestled with that, and put it aside.

What if he’s in a grouchy mood, what if he’s just gotten his lunch, he stops eating if someone is there…..what if there is a mess all over and soiled clothes piled high in the hamper, like there has been before. The smell reached all the way down the hall. Sometimes he refuses to let the aides pick up his laundry.

I think of him how he looks now. So frail, so weak, a shadow of the man he was before.

I pulled into a space and my swirling thoughts quieted down like snow at the bottom of a snowglobe.

I bowed my head, and prayed for him right there in the parking lot. For his life, for the rest of his life, however much is left. For him to remember what he heard in church all his younger years, he and his sister, still vibrant and full of life at 88. She chose the better path, the path of faith, of life. Of Jesus.

I pray for a miracle before the end.

Then, like that while feather that floated from the sky in Forrest Gump, I realized that a miracle had happened, the anger I had before was gone. It had left like a wisp of smoke and I hadn’t realized it before then,  and I know just when it happened.

Be angry, and do not sin.
Meditate within your heart on your bed, and be still. Selah
Offer the sacrifices of righteousness,
And put your trust in the Lord
Psalm 4:4,5

Tomorrow, I will write more…..until then I join with the gratitude community and with the ones who are unwrapping his promises.

Okra reaching for the sky, how my story touched some hearts, and how I made some new friends, completed projects and a clean shop, friends across the miles who text, another chips and salsa timeout yesterday, freedom to gather together in worship one more Sunday, a new friend for my brother, my nieces Mom who takes Lauryn everywhere with her and doesn’t leave her behind, and facebook for keeping in touch. #933-943

In the wee small hours

Lying in bed, I think, ‘When will it be morning?’ But the night drags on, and I toss till dawn. Job 7:4 NLT

It always amazes me that I can find a Bible verse that applies to each and every situation. I was up once again at 2:00 AM. I was also up yesterday morning at around the same time. I scared Elaine to death because she thought she was being really quiet when she snuck into my bathroom at 2:30 and I said, “What you doing?” She almost jumped out of her skin. She was trying not to wake me but no worries there. She was really trying not to wake her Mom on the other side of the house. You learn with an Alzheimer’s patient, you do anything in the world not to wake them at night.

Elaine has spent many hours awake since her Mom took over her bedroom. She now sleeps in the Arizona room which has walls and a ceiling but not much in the way of insulation. It is like sleeping by the Indianapolis Speedway. People drag up and down the street all hours of the night. She has a radio on at all times to mask the noise and her tinnitus.

I couldn’t believe I was up once again this morning,  tossing and turning. My thoughts were like fireworks going off in my head. The more I thought about getting up at 4, the wider-awake I remained. I prayed…..I recited the 23rd Psalm which usually works like a tonic. Not this time.

I dreamt of that blessed blessed sleep that comes. The Bible calls it “sweet sleep.”

I finally got it at around 3:30. Right before the alarm went off. I got up and started the coffee and layed back down for a few minutes. As I sat blinking, fuzzy-headed, sipping my first cup, the chorus of an old hymn was playing through my mind and it comforted me…….

Jesus is tenderly calling me home
Calling today, calling today
Why from the sunshine of love will thou roam
Farther and farther away?
Calling today, calling today
Jesus is calling, is tenderly calling today.
Jesus is calling the weary to rest
Calling today, calling today
Bring Him thy burden and thou shalt be blessed
He will not turn thee away.
I looked it up just now…….Turns out it is an old Jim Reeves song, lyrics written by Fanny Crosby.


I was thankful once again, that I was raised singing those old hymns…..I love the modern praise songs, but somehow when one of these slips quietly into my mind, I feel a peace like no other.

I think of my heritage, my Grandparents, all my Grandmother’s sisters, and I really feel they are cheering me on from Heaven.

I can do this thing.

The cake tells the story

After years of vain familiarity, some distant gesture or unconscious behavior, which we remember, speaks to us with more emphasis than the wisest or kindest words. We are sometimes made aware of a kindness long passed, and realize that there have been times when our Friends’ thoughts of us were of so pure and lofty a character that they passed over us like the winds of heaven unnoticed; when they treated us not as what we were, but as what we aspired to be. Henry David Thoreau

I am so thankful today that I have such a friend, and today I celebrate her life, her Birthday. There are so many things I would like to give her, so much she deserves. If I could I would give her a trip to Paris and a dinner under the twinkling lights of the Eiffel tower. And a full moon smiling…….And then I would whisper a prayer to God to have the stars do a little dance. Cause sometimes, as she so often says, sometimes you just gotta give it a little dance.

Or I would buy her an East Coast cruise to tour every single lighthouse.

What I would most like to give her right now is freedom, which she doesn’t have. Freedom to get in the car and go somewhere, anywhere, overnight. She is doing what she has to do right now, even though it is incredibly difficult. She is living what Ann Voskamp so aptly describes as the Hard Hallelujah. Where faith meets reality.

I know that every day she meets Jesus, because she can’t do it without Him. Even with Him it’s tough. This cake tells the story of her life as it is right now. Her Mom asked what the cake was for, and then for the umpteenth time, she asked her whose Birthday it was. Really, that was partially my fault. I put up the Birthday banner way too early. You learn not to do that with Alzheimer’s.

Her Mom stayed in the kitchen and Elaine figured out why soon after when she came out with a piece of cake and said, “That is good cake.” At least she said it was good.

Months ago I had put in for this day off, her Birthday, so we could hang out like we usually do on her special day. Then there was a scheduling conflict with someone else and they would have had to come home from out of state early. She said, go ahead and let him have the day. That is just how she is. That’s why I love her so.

I don’t like to imagine my life without her joy, her laughter, her unique brand of sunshine. She loves God and He loves her. She is God’s kid through and through. You can tell by what she does.

It’s in the way she loves people. It’s in all the little things she does when nobody except God is watching. She is the one who sees the baby carrier in the beat up car and finds the weary parent and slips them a twenty. She’s the one who pays for the Sonic order behind her. She’s the one who hand delivers bowls of cut up watermelon for the neighbors.

And every time she makes ice-cream cones, she makes three more to take next door.

She’s God’s kid. She notices when people need help, need to talk, need a listener. And she gets busy and does something about it. Not a dispassionate noticer, not her.

She’s my best friend in the world and I wish everyone could have the pleasure of knowing her. She is truly, the friend everyone would like to have.

I know she will be embarrassed by this, but after all, best friends are for shining the spotlight on each other. She has been shining the light on me now for 23 years, and I thank God for her everyday. Her life is a blessing.

Happy Birthday Elaine!

The Alzheimer’s Institute

I accompanied Elaine to the Alzheimer’s Institute yesterday with her Mom.We entered through a shady entry with the biggest ficus trees I have ever seen. It was eerily quiet. We were 30 minutes early. You always have to start out early going anywhere in Phoenix, you never know what you might run into on the freeway.

The doors opened and we were ushered into the land of Nod. There was one man there, a very nice man who turned on the lights for us. He even brought us coffee. Elaine’s Mom, ever grateful and right on cue said, “This is the worst coffee I have ever tasted….” Said me, “I thought it was pretty nice of him to bring it to us.”

I have to say, it was a pretty impressive setup. They even had a library full of books and resources and computers you could use. Of course I was drawn to that.

Sitting there, we watched the staff start to trickle in. When you are with Joyce you can’t be surprised at what might come out of her mouth. One skinny but well dressed woman breezed through in a flowing dress and tennis shoes. She must walk to work. Said Joyce, out loud…..”That woman has some big feet.” I don’t think the woman heard her. Elaine always says, “Someday she is going to get me killed.”

We all traipsed back when the Doctor called us out to go through the results of the question and answer session. I listened as he went through his routine. Not much was surprising or new. He was youngish, and very nice looking and had a kindly manner.

My mind was running a ticker tape of answers as he addressed them both. Inside I was shouting.

Doctor: How is the depression?

What does she have to be depressed about, she has two people waiting on her hand and foot. She has the life of a Diva right now. What about the caregiver? She is emotionally bankrupt and overdrawn?? What about our depression?

Doctor: Her weight seems good.

Of course her weight is good. Her daughter makes two and sometimes 4 meals a day for her, why wouldn’t her weight be good.

Doctor: So there plenty of family and resources around to help out? Joyce said something to the affirmative. I wanted to laugh out loud…..

No, Doctor, you are looking at the one and only resource here. And she’s running on empty.

I finally had to speak up and make sure that Elaine as the sole caregiver would get some help. He assured us that someone would be in contact within two weeks. Okay, then.

All in all I would have to say it was a positive experience. It is geared to the patient and that is as it should be, however one thing I would change is that the caregiver should also be looked at as a patient. Statistics have proven that many times caregivers develop their own health issues and even die as a result of giving themselves over totally to the one they are caring for. I think they would do well to include some time alone with the Doctor so they can talk freely about their own needs.

In the meantime, I am working on memorizing 1 Corinthians 13:1-7. God has His work to do on me……

If I speak in the tongues of men or of angels, but do not have love, I am only a resounding gong or a clanging cymbal. If I have the gift of prophecy <sup class="crossreference" value="(B)”> and can fathom all mysteries <sup class="crossreference" value="(C)”> and all knowledge, <sup class="crossreference" value="(D)”> and if I have a faith <sup class="crossreference" value="(E)”> that can move mountains, <sup class="crossreference" value="(F)”> but do not have love, I am nothing. If I give all I possess to the poor <sup class="crossreference" value="(G)”> and give over my body to hardship that I may boast,  but do not have love, I gain nothing.


 Love is patient, <sup class="crossreference" value="(I)”> love is kind. It does not envy, it does not boast, it is not proud. It does not dishonor others, it is not self-seeking, <sup class="crossreference" value="(K)”> it is not easily angered, <sup class="crossreference" value="(L)”> it keeps no record of wrongs.  Love does not delight in evil <sup class="crossreference" value="(N)”> but rejoices with the truth. <sup class="crossreference" value="(O)”> It always protects, always trusts, always hopes, always perseveres.

Celebrating firsts, letting go of lasts….

Your skin like dawn
Mine like musk
One paints the beginning
of a certain end.
The other, the end of a
sure beginning.
Passing Time by Maya Angelou
When you have a child, it is important to celebrate the “firsts.” They are such milestones and so very important. They carve themselves in your heart and memory forever. And then there are the lasts…..the last time they will let you hug them…..in public, or at all! The last time they blow you a kiss or return your wave as enthusiastically as you give it. The last time you read them a story and feel them lean against you as if they will always need you this much. 
Sometimes they slip by unnoticed, but not because they aren’t just as monumental as the others.
My wonderfully stalwart and soft-hearted best friend has realized there are other types of losses and last things when your parents have Dementia and Alzheimer’s. She has had a whole year of “lasts” with her Mom and her Dad.
There was the last drive in the car, the last trip in the Motor home, the last time to pay a bill or run to the store. She has been with them through it all.
Yesterday was still another. Last time to take your Mom to the movies. First, she got lost. She said she didn’t have to “go” but changed her mind and went into a stall. Since she has the habit of wandering off, Elaine circled the theatre area, and then the parking lot. A lady said, “She went that way…..” Then, out loud during the movie her Mom kept saying, “This movie is weird.”
And she ate one kernel of popcorn at a time and then picked her teeth….and you don’t want to know what she did with what she found in her teeth. Imagine what a small child would do if they didn’t know any better. Alzheimer’s is ugly. And mean spirited. It has no mercy.
It was another last of many lasts. And the strain of it all makes her wonder if she is living her lasts as well……how do you grieve what never was in the first place? Part of the sorrow is knowing how it could have been And will you know the right time to say, “when?” Can you trust someone else to give you permission to lay it down?
And all the relatives wonder why she keeps trying. Why she can’t just put her in a home somewhere. Why she can’t let go. Everyone else has cut them loose. After all, their parents never really invested in their lives, or the lives of their Grand kids. You don’t grieve what was never there, after all. You just live your life as if they don’t exist.
And the time and memories are like water rushing under a bridge…..sometimes, regrettably, not nearly fast enough. And that time is getting closer every day.
And sometimes the saddest thing we can learn from others is how not to live a life…….
And when the end does come, she will have known she did all she could with the help of her Savior who knows and sees all. She is doing what she must do, right now, one day, one moment at a time, and trusting Him to let her heart know when it is time to let go.
Your eyes saw my substance, being yet unformed. And in Your book they all were written,The days fashioned for me,when as yet there were none of them……….Psalm 139:16

Sanity Restored

but just as it is written, “THINGS WHICH EYE HAS NOT SEEN AND EAR HAS NOT HEARD, AND which HAVE NOT ENTERED THE HEART OF MAN, ALL THAT GOD HAS PREPARED FOR THOSE WHO LOVE HIM.” 1 Corinthians 2:9
What a wonderful time away in beautiful San Diego. God is so good. He has created such beauty in the world for us to enjoy. The balmy breezes you hear about? All true. I felt them, every one! It was such a blessing to have this change of scenery that I love so much.
Best of all, I got to watch my best friend become her carefree self once again.
When you are a full time caretaker, your needs go on the back burner and you actually morph into the person you are care giving. Your own self disappears. That is when despair settles in because you really don’t see an end. It is as your view is distorted and you can no longer see clearly. It is a sad and curious phenomenon that everyone who has done this knows very well.


But for four wonderful days, all that was left behind. Sanity was restored.

We stayed in a place where it was easy to forget……they even had two resident parrots who rested on a perch right outside our room. We could hear them screech from time to time, and the seagulls crying overhead made us sigh…..

And far away, the magical sound of the foghorn drifting across the water.

It was all so very good.

A big thank you to Elaine’s Nephew Mark who stayed with his Grandma so she could have a few days rest. God bless you!

“Every good and perfect gift is from above, coming down from the Father of the heavenly lights, who does not change like shifting shadows.” James 1:17

The Next Room of Prayer

For we do not wrestle against flesh and blood, but against the rulers, against the authorities, against the cosmic powers over this present darkness, against the spiritual forces of evil in the heavenly places. Ephesians 6:12

Let us firmly resolve not to lost the battle we fight. For if the devil sees that we are willing to lose our life and our peace, and that nothing can entice us back to the first room (first stage of prayer), he will soon cease from troubling us. But we must be resolute, for we fight with devils, and thus, there is no better weapon than the cross. Theresa of Avila

I tend to blame a lot of the way I feel on external things, people, life…….circumstances around me. But at the heart of it all, is my own response to all those things. My own internal struggle, the one that wages on in my soul, that old spiritual battle we have fought since the beginning. That is what keeps me in prayer. If Satan can convince us that the battle is lost, like we are failures at our faith. He has won.

Sometimes it doesn’t seem like we are getting any closer to our goal…..but the truth may be that we are closer than we think. It may be that we have moved up a level, into the next room of our prayer life. Lately I have felt much like a hollowed out gourd. Writing about anything has been hard. I have a person living in my home who has exposed me to myself…….made me see the reality of just how weak my faith is. Can it be that is what God has wanted me to see all along?

How can I ever fully understand His strength unless I am met face to face with the stark reality of my weakness? My inability to do anything on my own?

It is no wonder I am exhausted. I have been wielding my own sword and not His.

It is this act of laying down my very ineffective sword again and again………that is where the real battle comes in. Like Peter, I want to take matters into my own hands and slice off the ear of the guard. I so identify with Peter. He sees chaos coming and wants to defend, to fight, to fix, to right the wrong on his own.

But Jesus says no.

Jesus walks right through the middle of it, knowing that in order to win the war you have to pick your battles.

And for the joy set before Him endured the cross…………..”Let us fix our eyes on Jesus, the author and perfecter of our faith, who for the joy set before him endured the cross, scorning its shame, and sat down at the right hand of the throne of God.” Hebrews 12:2

What matters most

Above all powers
Above all kings
Above all nature
And all created things
Above all wisdom
And all the ways of man
You were here
Before the world began……
This was the week Elaine and I were supposed to go on a cruise to Belize. Caretaking took that away as it has taken many things away this past year…..
But somehow, sitting in church yesterday listening to the sermon and, most of all,  having Elaine’s Nephew Mark sitting right beside us. The cruise didn’t matter as much anymore. Not if it meant having an eternal impact on someone dear. None of our travels matter much in the long run.
What I heard yesterday reminded me. Knowing God matters more. Reaching the halls of Heaven matter. Hearing the gospel and having a chance to respond? That matters more than anything.
When the Pastor took the long black rope representing our whole life plus eternity…..when he held up the piece with the knot about 4 inches away from the end, and how we pour everything we have into that four inches representing our very short time on earth…..
Our hopes, our dreams, our ambitions to make money, have a successful career, a family…..all on that very tiny end with the knot.
And we fail to think, to plan. For the rest of the rope that represents eternity. Stretching on and on.
We fail to count the cost.
Fail to plan for eternity and where we will spend it.
As he said the words, I felt the chill…….Saying “maybe tomorrow” is the same as saying no to God.
Later today is also a refusal.
With all that life hanging in the balance, 
A little cruise didn’t matter so much anymore. 
Above all kingdoms
Above all thrones
Above all wonders
The world has ever known
Above all wealth
And treasures of the earth
There’s no way to measure
What You’re worth
Crucified
Laid behind a stone
You lived to die
Rejected and alone
Like a rose
Trampled on the ground
You took the fall
And thought of me
Above all
 Michael W. Smith
the blessings keep coming, as well as the grace…….Awesome church service yesterday, just when it was needed most…..warm beds at night…..money for the new fridge…..and for the new coffeepot when the other gave out……music to soothe rumpled souls…..praise that lifts the tired and poor of spirit……God’s Spirit that helps us through it all…..warmed up oatmeal maple scone……walking in the mornings chill…..time off work, even when I am not going anywhere……#802-812

Impossible Joy

Who shall separate us from the love of Christ? Shall trouble or hardship or persecution or famine or nakedness or danger or sword?  As it is written: “For your sake we face death all day long; we are considered as sheep to be slaughtered.” No, in all these things we are more than conquerors through him who loved us. Romans 8:35-37


The past year is fast receding, along with all the events, challenges, joys and sorrows along with it. As I look back along the 365 days worth of everything that made up 2011, I am once again filled with thanksgiving of what He brought me through. I reflected on this one thought this morning on my 30 minute commute, as my car idled into the parking lot and came to a stop.

That in every seemingly impossible situation during the past year, impossible joy came along for the ride. In the moments of hysteria, sometimes laughter rose up beside it.

In helping my best friend deal with both parents, one with Dementia and one with Alzheimer’s, I learned many things about myself, some things which were not pleasant. I learned how easy it is to love the lovable, and just how difficult it can be to love the unlovely, the unlovable. It stretches you like nothing else. Several times a day I fail miserably. But I am thankful for that too, for that is what keeps me praying.

I am amazed at what transpired, what we got done.

What He brought us through.

And I am amazed at how painful moments can recede in hindsight and the joys magnify.

Like stones worn smooth by a rushing river, He smooths us out. It is easy to forget that just like that mighty river that is flowing all around us, He is still and always, there.

Washing us clean, making us more like Himself.