Alzheimer’s/Dementia

Just Breathe…..

Let there be a place somewhere in which you can breathe naturally, quietly, and not have to take your breath in continuous short gasps. A place where your mind can be idle, and forget it’s concerns, descend into silence, and worship the Father in secret. There can be no contemplation where there is no secret. Thomas Merton, Book of Hours

This book has been a comfort for many years. Though months might pass between the times I open it, the power and beauty in its pages has never dimmed or failed to renew. Merton’s words crack open a place deep in my soul where the Holy Spirit dwells. There is wisdom here that I need to return to again and again. It reminds me of who I am in Christ and the assurance that despite everything we see around us, God is holding it all together. It speaks to me of the dawn of Creation, and how we are all longing for our true home. Everything we reach for in this life hearkens back to our longing for Eden.

Being trapped is a terrible feeling. Can one find happiness in a few measured moments of peace between days that threaten to squeeze the life out of us? Care-taking affects everyone involved, not just the ones doing the caring. That’s the hardest part. Is it enough to say it won’t last forever? And what happens after? What sorrow lies on the other side? Yet I know that the sorrow is part of it all, and the sweetness of the good memories that will replace it. And the going on part will come, that embracing life once again. Finding that path of redemption and freedom we once knew. Plans will once again be made and followed through on. That’s the hope that keeps us going. 

I took Mom to see Dad yesterday. He was facing away from us and I was a little shocked at how he looked. He requested a buzz cut and he got it. He had no hair! It was a good visit for he and Mom. Mom joked about having a boyfriend and Dad laughed. They held hands as we sat by the aviary. 

I thought maybe I would feel sorry for the birds, but it was hard to watch them and not smile. They had a nice home and could fly to and fro. There was a big perch in the middle where they would simultaneously all land on, then promptly vacate as they rocked it back and forth. They were like little grey, brown and yellow comedians as they flitted around. Mom and Dad loved watching them and so did I. They had a good clean home and food and they were safe from predators. And they didn’t seem to know or care that they didn’t have their freedom. 

Maybe I can learn something from them.  They have no clue about time, just one day flowing into the next. But I am never not aware of time, right now what it looks like is a huge clock with legs. And it’s coming for me.

The other day I gave myself a day of freedom and I didn’t call anyone, didn’t go see anyone. I….just….came…..home. I felt like my old self again. Elaine and I went for a ride and laughed at everything and nothing.

Oh how I miss that.

Taking a breath

This season in my life is especially difficult for us all, and COVID has made everything worse. Dad has landed in a Convalescent Home. It all started the night Mom called me in a panic at 2:30 AM shouting into the phone, “Are you there, Lori, Lori, I need to call her…..” We had had several panic calls from Dad over the past year and I just figured this was another one. Something about this one seemed different.

When I rounded the corner and saw the ambulance and firetruck my heart dropped. It dropped even further when I came in and saw Dad lying on the bedroom floor with blood behind his head. Some things you cannot un-see, and that one will be there forever. They left so fast, there was no time to find his ID. Elaine thought to look in his pants pocket and we then rushed them to the hospital.

After several days he came home and collapsed again. 

So we are a small village of caretakers now. My brother, myself, Elaine and I. Mom can’t stay alone. I go from one place to another and back again. Mom doesn’t remember why Dad is there and asks continually when he’s coming home. It’s been mostly bad, but there a few moments here and there that we laugh together, and she expresses the joy of a child when I warm a blanket and throw it over her. 

I made her table look like Christmas and she exclaims surprise and joy all over again when she sees it. 

I feel like my soul is scoured out most of the time. Empty. I don’t do what I used to do. I no longer sit by the river, it gives me no comfort. I see it and it moves by soundlessly but it doesn’t touch me. I am continually distracted by the next phone call, the next text. My life right now is a treadmill and a schedule. Driven by the clock.

And yet, I have a best friend who is my emotional rock. She’s a pillar of strength. I’m not going it alone. There will be an end to this all. And God will be ready to embrace them both when it’s their time. Until then we do what we have to do to make things better for them. 

Books remain a joy, God has left me that. I snatch moments now and then. I can’t read at Moms because the questions are nonstop. She is trying so hard to map her world out right now. I feel so sad for her.

Churches remain closed and it amazes me how our whole world has changed since we stood on the beach at Moss Landing on the cusp of 2020. I wonder what has happened to us? I can’t help feeling in some ways this pandemic has revealed the apathy of the American church. How we have changed from the Pilgrims who risked everything to be able to worship freely. How much we have changed from our parents and grandparents generation. 

Have we caved into fear, or is it the right thing for society as a whole to keep everyone “safe?” Was being safe even a consideration of the early church? Have we missed the opportunity to show the world what God can do? It’s hard to know what’s right anymore. I don’t pretend to have the answers. Thankfully, God remains the same. Yesterday today and forever.  On that we can be assured. His mercy remains the same as well, thankfully.

Until then we soldier on and do the best we can. Help each other the best we can. We will get through this. It’s almost a new year and I need to remember who Jesus is. I have felt lost this whole year, but maybe writing can help me find my way back home. 

Whoever is still sticking with my inconsistent blogging, here’s to a hopeful 2021. My prayers and best wishes go with you all.

Remember Me

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What do you see when you look at me? Do you see only the rumpled clothes, the spots I can’t see? The spilled food? Yes, my hands shake and my steps falter, but I have lived life and it has erased much of what I was before. If you look closer you can still see who I used to be. It takes love to remember it. The love I gave you for so many years. The love I’m still trying so hard to give.

When you are impatient and have to wait for me, remember all those years I waited for you. I waited for you to walk so that we could walk together. And we did. Our lives were a set of parallel lines that made up all the joy in my life. Everything I did was because of you, in you I found my purpose.

Remember for me when I can’t. I know it’s hard when you have to answer the same question again and again, but instead of irritation, replace it with something else. Replace it with the love that was behind my every task. Let it temper the anger that is so quick to flare up.

Remember the Birthdays I never forgot, the cakes I got up early to make, the laundry I folded, the endless meals I cooked, the alarms I set to get you up and ready for the day.

The prayers you never knew I said.

Please be patient and know that when I struggle to read directions or do a task, I am frustrated too. Do you remember the light in my eyes every time you said yes to something I suggested we go do? The hope behind it all. I think maybe my eyes only truly saw for the first time when you were born.

Remember me in my strength, not in my present physical weakness. Can you let our love run together in the same direction as it used to? I’m worn out and worn thin and my memories haunt me much of the time. That is, when I do remember.

Someday soon I will be gone, and it’s my hope that you won’t regret what you didn’t do. I certainly won’t hold you to it. The hardest thing is to learn to forgive yourself. It’s a lesson I wish I could have learned in life. I know that only with God is it remotely possible.

Now, all of my past mistakes are long forgotten and I dwell in the Light of Eternity where there is no longer anything to regret. I have greeted those who I’ve longed to see again. Here there is only Love.

I’ll wait for you here.

What’s in your cup?

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Dad called, “We just have too much,” he said, “We cleared out the shelf where we keep the coffee cups, and there’s only two of us here now…..” When I got there they were all over the table, stacked two deep. He wanted to throw them all away. There was a sense of urgency about it, like so many things he is wanting to clear out lately. I said, “Well, let’s just sort through them and see which ones you still use. We agreed that they had to keep the ones from the Ahwahnee in Yosemite. And the one to Grandpa and Grandpa from Lauryn. We narrowed it down to 5 or 6 out of 20. 

Clearing out things can be a lot like clearing out a life. An acknowledgment that an excess is no longer needed. It can be liberating but also diffused with a sense of finality. Memories are attached to things and that’s where it gets tricky. There are hoarders who have a mental condition that prevents them from throwing anything away. I guess they find a kind of comfort in all those piles of stuff. And then there is the opposite, throwing away everything and then wishing you hadn’t because you realize there is still life to be lived.

When life spirals out of control I guess you feel you must do something about the things you can control. Little things become paramount. You can’t control getting older, or change, or a ravaging disease, but you can control the things you see in the immediate space around you, so there’s a sense of haste.

I kept the best ones and took them to a local cafe where they accept everyone’s used cups. It’s a cool thing I think, like drinking out of someone’s history. I find comfort in knowing some of their coffee mugs will live on in our community. I like to think the many prayers and all the laughter shared while using those cups and the hands that held them over the years will somehow pass a little peace and grace on to the next user.

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For so many years, their home was where everyone came. There was always a knock or a hello through the screen door and the phone was always ringing. “I’ll just put on a fresh pot of coffee,” my Mom would say. Even now, I can see shining eyes, and ringing laughter over those cups. The walls hold the memories even in the silence. The winding down of life.

The Bible speaks about our bodies being living vessels. Far too many years I tried to fill it with things it was never meant to hold. The Christian life is a series of emptying and filling. Sometimes this life just empties you out. People and circumstances can leave you feeling that way. Maybe that is Jesus’ way of getting us out of the way so that He can fill us with Himself.

Jesus once had to drink from the worse cup ever. But drink He did, to the bitter dregs. He did this so that we wouldn’t  have to. Has your coffee gone cold? Are there only the bitter grounds of yesterday? Pitch it into the bushes and refill from a fresh cup of Grace today. Jesus stands ready. The campfire is warm and the coffee is hot. 

“You prepare a table before me in the Presence of my enemies, you anoint my head with oil; my cup overflows.” Psalm 23:5

cups

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So yesterday was the first day of my two weeks off school. And it was one of those “perfect” days. My mood was buoyant, like a ship sail catching the wind. I read “Before We Were Yours” through 3 cups of coffee and then took a walk through the nearby neighborhood. Only a very few walkers were about. 

There was a gentle rain that started later in the day and that made everyone happy because it’s so needed. It was one of those magical March days I remember from growing up here. All of the fruit trees around town are in flower. Popcorn in shades of pink and white. Then the wind comes and it rains blossoms and you feel like you are inside a Haiku. The real rain comes and the poor daffodils try so very hard not to bow to the ground with the weight of the water.

Good News! We finally found an elliptical that was in really good shape not too far away so we put all the seats down in the car and drove to get it. Once there we wrangled it into the back with one bungy cord and packing tape. I climbed in the back and held onto it the whole way home. It wasn’t going anywhere.

I felt like we really pulled something off and we did. This thing sells new for $600-$800 and we got this one barely used for $200. I feel 15 pounds lighter already.

Now it’s the next evening, Sunday. I have felt off all day. Not like the “Golden Yesterday” But it’s still good. Part of what happens in this life. Some days you just feel off, like the stillness before an earthquake or a tornado. You brace yourself for something but you don’t know what it is. 

But this is the wonderful and weird thing. All day, and I mean literally ALL day, this Mockingbird has been singing and I feel like it is trying to sing me through the day. And this is what God does. He tells us that we will always be okay by giving us little signs. If this bird can sing all day, then I figure he must be right.

There is something to sing about, always.


Happy New Year!

We celebrated it as usual at Moss Landing, a little fishing village on the Pacific Coast. It’s the absolute best place to start fresh in my view. Something about standing on the shore listening, watching with your eyes and ears as well as your heart makes it easier to leave the previous year behind and have hope for the year ahead.

Every year is a bit different, and this year was even more so with the roaring of a bulldozer silhouetted against the sky. Something about taking sand and silt out of the marina. We never quite got a good explanation. We could walk south and still be out of range of the sight and sound of it, and hear the foghorn.

This year it was harder to let my worry go and I never did entirely, but we were blessed with 4 days of great weather and I was so thankful for that. Mom’s health issues right now are tethered to my heart. It’s a learning process, the letting go. I am so very thankful I have a best friend who is so in tune to me and my moods. She understands the emotional roller coaster better than anyone having gone through it with her Mom.

Mr. Briggs was a champ on the road. At 19 he is still a perfect cat. We got him fresh shrimp from Phil’s and once we were settled he was one happy cat. The camp host cats Moxey and Soxie were still there to greet us as well. All in all, it was a wonderful start to 2020.

I continue the battle with extra weight. Last year it was 10 pounds, now it’s 15. I gave up the gym membership due to break-ins at the parking lot there. I am trying to get out and walk more, increase my steps. I have yet to brave the scale, I know that’s what would really give me the impetus I need. Soon.

On school break I acquired piles of books from the library that made me very happy. I heartily recommend the new one by Mitch Albom, “Finding Chika” (have Kleenex handy.) I will continue to write about prayer, which is what started this whole blog way back in 2009. Just keep praying, folks. Even if you aren’t sure anyone is listening.

I was given a gift long ago. I can’t even remember when, but I know my Mom probably had something to do with it. She has prayed for me ever since I was born. I have always known God is listening. What a gift! I don’t ever say it in a boastful way because I know beyond a shadow of a doubt that it has nothing to do with me and everything to do with God. 

He loves you. Whoever you are, whatever you’ve done. Invite Him in to your life and see what happens. Leave your heart, eyes and ears open! And Happy New Year to you faithful souls still hanging in here with me. Bless you.

Extraordinary Grace


This is a thankful post on a day we celebrate things like that. It’s about a regular day, yesterday, which was just about perfect. To start, I was off work and the anticipation of having five days off contributed to a general feeling of well being. That in itself is something to give thanks for. In addition we had a real honest to goodness storm with rain and wind. It wreaked havoc with leaves, branches and debris in its wake, but the air was fresh and clean and I took deep life-giving breaths as I stood on the river bank.

The river rolled by looking so smooth and pure I had to stop and say what I call an “awe” prayer. It’s the kind of prayer that is more just an exclamation of exultant joy at the beauty that God has given us. The yard was a mess. I dragged a few big branches to the river’s edge and threw them in. I took a few photos and then went back up our little hill to the Motorhome.

The floor Elaine put in looks fantastic, gives it a whole new look. It was a real pleasure to see that ugly linoleum gone. I found a classical Christmas station which was very pretty but was a bit melancholy so I switched it to Smooth Jazz Christmas and that added to the general feeling of well-being.

After we got ready to tackle items on our list, we went to breakfast at the Hollywood cafe and as usual the staff was wonderful and the food was excellent. We had Joe’s special which was scrambled eggs with hamburger, cheese, fresh spinach with hash browns and toast. We stopped by the Animal Shelter to measure the shelf for the carpet for Coco. Last time I was there he had a terrible trying to get a grip on the slick shelf.

After that we got all the stuff on our list including baseboards to finish off the floor. We had a great time getting everything on our list. I saw some truly miserable people at the grocery store which made me sad for them. I have been where they are.

There was a time not so long ago where I was unmoved by everything. It was a tough time. I didn’t care about reading, nature, anything that usually lifted my spirits. If not for Elaine (and lots of prayer) I don’t know what I would have done. She patiently told me to snap out of it and that made me laugh despite myself. Seriously though, it took lots of prayer, counseling and “motoring” through it. And the Doctor put me on a low dose of Zoloft, which I still take. There may be a time when it’s right to go off of it, but for now it’s working for me.

I guess that’s why I am so grateful for the good days. I remember the despair. There are many more good days now and I enjoy going to the library once again. People wonder why I go every week, but it’s like a tonic to me, even with all the homeless hanging around there. I am happy books make me happy again.

The end of the day had a bit of drama but nothing that tarnished the day for me. The opportunity presented itself to give Mom a hug and that was appreciated. We ended the day with a bit of Amaretto, a yearly Christmas treat. I fell asleep to the sound of rain again. It was marvelous.

It put me in mind of another day a long time ago when Mom and I had a good day together and we were listening to Susan Boyle sing “A Perfect Day.” Mom said, “This was a perfect day.” I told her, yes indeed, it was. 

It lives in my memory, and so will this day. I wish you all a Happy Thanksgiving from my humble Prayer Closet.

Everything is blooming most recklessly; if it were voices instead of colors, there would be an unbelievable shrieking into the heart of the night. Rainer Maria Rilke

I’m Still Here

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He will cover you with His feathers, and under His wings you will find refuge; His faithfulness will be your shield and rampart. Psalm 91:4 

I remember the times when remembering brought comfort. Now my memories have turned against me; they remind me of all I have misplaced.  Once they were sweet traveling companions on my journey. The good ones I would turn over and over like a worn river stone, keeping them close.

Hold me like one of those well worn stones, Lord

Once my mind was clear and sure, now it’s a labyrinthian nightmare. I used to know where I was in my world and where I was going, and now the path is hidden from view. I can’t seem to find my way. I’m not myself. I don’t recognize the person I have become and yet I still know who I used to be. That’s the worst part. 

But this I do remember, this thought holds me:

You are all around me on every side; you protect me with your power. Your knowledge of me is too deep; it is beyond my understanding. Psalm 139:5,6

Help me remember who I am in You Lord. Thank you for holding my place in line until I find my way home.

Remember when you loved me? Remember when you didn’t want to escape who I’ve become? I still love, I’m still here, I’m still me. Do you hear me? Do you see my desperation when I try to follow the thread of conversation? I ask questions because I’m trying to find my way back. I’m lost in my own life. It has become easier not to talk, and yet I am so lonesome for the conversations we used to have. I am quiet on the outside and shouting on the inside. 

I feel guilty all the time because I can see you get frustrated and I don’t blame you. That’s why I ask over and over if I said or did something wrong. Because I feel wrong. Everything feels wrong and I feel bad for you. Once I was the one who held our world together, made it all work. I was the encourager, the cheer coach, the mender of clothes and hearts and skinned knees. The engine that could. 

There were days I couldn’t keep from singing. Now I spend my days looking for familiar landmarks. I long for safety. One thing remains the same. Immersed in His Grace, I find comfort knowing that my Father has not left me. He has kept the treasure of who I used to be. He holds me fast even when I can barely hang onto myself. 

“We will too Mom, we will too.”

This is dedicated to you, Mom. You are still our anchor. 

Cherish the firsts and inbetweens my friends, because you never know when they will become the lasts.

A breath between life

 

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How long we wait,  with minds as quiet as time…..Thomas Merton 

It took half a day or so to work its magic, the sea. I tossed and turned the first night, rolling thoughts over and over like the waves themselves. The next morning I let the beach release me from all that was troubling. I let myself fall under the spell of the sound of the surf, rolling, crashing and thunderous. 

I marvel once again at a Creator who would put so many mile markers right in front of us for us to find Him, thankful that He reveals Himself to me this way.

I remember when I was a kid, how that first glimpse of the straight blue line of that body of water against the horizon filled me with an excitement I could barely contain. Like an old friend it beckoned. Then, it was all the other stuff mixed in too. The Boardwalk, the Merry Go Round, the Taffy window. Now, I need only the sand under my feet and that pounding relentless surf.

Some say it’s just gravity that keeps it from flowing onto the earth, but I know the voice, the power behind it all. There was a time Job had questions and God had answers. All of us at some point have questions attached to our grief, our suffering. I ask why my Mom has to navigate her way through this betrayal of her memories. She remembers when remembering brought comfort.  Now her memories have turned against her; reminding her of all she has misplaced.

But the most important thing is she still knows the answers and so do I. Some things we just won’t understand this side of Heaven. She still knows her God and that He is supremely good and that never wavers for her. As she told me yesterday, “She still belongs to God. He still holds her.”

I walk and walk. And I let the surf wash over my inner soul. The deep place where the Holy Spirit rests in the quiet. I hear God’s reply with each step. And it’s all the answers I need. 

Who enclosed the sea with doors when bursting forth, it went out from the womb; when I made a cloud its garment and thick darkness its swaddling band, and I placed boundaries on it and set a bolt and doors, and I said, Thus far you shall come, but no farther; and here shall your proud waves stop? Job 38:8-11

Yes, the sea has worked its magic once again. We are blessed to be able to come back to this place. This peaceful place that has come to seem like home. Doubly blessed to have someone to share this leg of my journey with. 

I Choose Happy

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That same day Jesus went out of the house and sat by the lake. Such large crowds gathered around him that he got into a boat and sat in it, while all the people stood on the shore. Then he told them many things in parables, saying: A farmer went out to sow his seed……” Matt. 13: 1-3

There is a little kitchen towel I have. It used to be very bright orange and sunny yellow. Because of my old bug yellow will always be a happy color for me. On it are printed the words, “Choose Happy.” Lately there have been things pressing in on me. School starting again, the future, the transitory nature of where we are living, Mom’s illness.

And currently we are facing a homeless/drug element in our town. Transients are camping by the river and there are pictures of feces and you name it on the shore. They clean it up periodically and then they all come back. That has made me extremely upset and restricted my activities on the river this summer. I’ve been wondering why the environmentalists so prevalent in our state are not coming out of the woodwork on this issue. I feel robbed. Cheated.

The thief (Satan) comes only in order to steal and to kill and to destroy. I have come that they (we) may have life and have it in abundance. John 10:10

Everything in this world was set in motion and created by God. Perfectly in balance. The effects of sin have tarnished it. The evidence is all around us. Jesus came to counteract the eternal result of that destruction.  He also makes it possible to supersede all the negativity around us and still embrace life, and beauty, and hope and joy. We don’t have to let the world steal it. It is a choice we have.

It was with that attitude I awoke yesterday morning with a defiant stubbornness to  “Choose Happy.” I shook out the towel from the cabinet, hung it up and claimed Jesus promise. I took it into my heart and prayed it as a mantra all day. And you know what? My attitude changed.

This morning I walked down to the river and saw the magnificent beauty that was there all along. A gift of joy returned. I choose life. I choose gratitude for where we are now. I choose thankfulness for the beautiful message my Mom left me on the phone. That she loves me and glad that I am her daughter.

You see, when I read the parable of the sower and the soil today I realized that while the seed started out good, it was the conditions of the ground it fell into that varied. Each day we are given a choice and each day we live for Christ the choice can only be life. Because He died and rose again to give it to us.

It’s an old old story, but one I never get tired of telling.

Be at peace with your life my friends. He’s got this. He’s got you.